Application of standardized assessments in patients with neuromuscular diseases: Benefits and practicability for physiotherapists and patients.
The aim of the project is to find out whether standardized assessments of the matrix of the Neuromuscular Center Schleswig-Holstein (NMZSH) are applicable and practicable in outpatient practice. Furthermore, it is to be evaluated whether physiotherapists can document information on the patient's state of health more precisely by using them and whether targeted therapy can be better derived from this.
During this process, patients will also be asked about the practicability of the assessments and their effect on treatment in the form of a self-assessment.
In this project, the focus will be on physiotherapists as well as patients, as they play a major role in the care of those affected and the NMZSH has therefore selected them as a pilot occupational group. The aim is to subsequently transfer the results to other professional groups in a modified form, as interprofessional communication and cooperation are considered an important contribution to patient safety.
The study is a multicenter feasibility study and may take place at the NMZSH and the outpatient physiotherapy practices of the patients. For this study, 80 participants and their outpatient physiotherapists are to be recruited for the survey. All participating patients will initially complete a baseline questionnaire with questions about their state of health, everyday activities, participation and current physiotherapy treatment. Every 3-6 months (a total of 3 times during the course of the study), the patients will undergo a presentation at the NMZSH or an examination by the physiotherapist, which will be accompanied online by the study team. At the same time, the participating physiotherapists treating the patients will receive a questionnaire regarding the knowledge, use/exercise and practicability of standardized assessments. Every 6 weeks, patients and physiotherapists will complete follow-up questionnaires in which the practicability of the assessments and their impact on the therapy will also be assessed.
Attachments:
Flyer
Therapist information
Patient information
Project partners:
University of Lübeck
Institute of Health Sciences
Department of Physiotherapy
Prof. Dr. Kerstin Lüdtke
UKSH
Neuromuscular Center Schleswig-Holstein
Prof. Dr. med. Julian Großkreutz
German Society for Muscular Diseases
Joachim Sproß
Project management:
Kirsten Großmann, MSc
University of Lübeck
Institute of Health Sciences
Department of Physiotherapy
Kirsten.grossmann(at)uni-luebeck(dot)de
Prof. Dr. med. Julian Großkreutz
UKSH
Department of Neurology
Precision Neurology
Neuromuscular and Motor Neuron Diseases
